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Extended call for participants: A study on the costs of living with a food allergy

This survey was originally open from May 2018 to July 2018. As this survey is significant to understanding the economic burden of living with food allergy, it has been extended to October 31st, 2018 so more people can provide their input. If you have already completed this survey thank you for your participation. You do not need to complete it again.

If you are an adult or parent/caregiver of a child with food allergy, you are invited to participate in a study looking at the costs involved in living with a food allergy.

The results of this study will help inform organizations like ours on the economic impact of living with this medical condition. This allows us to advocate on your behalf to make positive changes within government and industry. Your participation is crucial to providing the researchers with meaningful results. Please take a moment to complete the survey.

For details on the study and how to participate, please see the note below from the researchers. Please note, a French version of the survey is also available.


From the research team

Dr. Ann Clarke
Image: University of Calgary

The research team, led by Dr. Ann Clarke of the University of Calgary, is looking at the economic challenges experienced by adults and parents/caregivers of children living with a food allergy.

Eligibility
This study is open to all Canadians living with food allergy. Participating adults or children (ages 0-18) must have received a food allergy diagnosis from an allergist, family doctor, or pediatrician, and live in Canada. Please contact your physician if you have questions about your or your child’s allergies. 

How to participate
The person most knowledgeable about the impact of food allergy in your household is invited to complete a secure, online survey that will include questions on your/your child’s:

  • food and related allergies, reactions, treatments, and family history of allergies
  • health care use (i.e. doctor visits, allergy tests, emergency department visits, medications)
  • time missed from work, housework, volunteer activities

This survey should take up to 20 minutes to complete. To thank you for your time, participants who complete the survey will be entered into a draw to win one of ten pre-paid $50 Visa gift cards.

Following the completion of the survey, you will be asked to complete a shorter survey about other food allergic members in your household (if applicable). A link to this second survey will be provided upon completion of the first survey.

This shorter survey should take up to 15 minutes to complete for each additional food allergic individual. We understand that this requires a greater investment of your time; however, an accurate picture of the total household costs is critical to understanding the economic impact of food allergy on Canadians and their families.

Confidentiality
Participation in this study is entirely voluntary. You may refuse to participate, or you may discontinue your participation at any time without explanation. All information obtained during this study will be kept strictly confidential. The research data will be available only to the research team. This study has been approved by the University of Calgary Conjoint Health Research Ethics Board (Study #17-1350).

Complete the survey
Click on this link to start the survey: https://ca.surveygizmo.com/s3/50021259/CanadianFoodAllergyEconomicSurvey

The survey will be open until October 31, 2018.

Questions
If you have any questions about the study, please contact: Chynace Lambalgen at cjvanlam@ucalgary.ca