HomeYour voice is needed: Participate in an important research study that will help to measure quality of life

Your voice is needed: Participate in an important research study that will help to measure quality of life

January 28, 2019

Dr. Philippe Begin M.D. (Norbert von der Groeben/Stanford Hospital and Clinics )

Participate in a new study that aims to understand your health preferences and how food allergy affects your quality of life. This study is a collaborative initiative with CHU-Sainte Justine’s in Montreal and Food Allergy Canada, and is sponsored by a Canadian Allergy, Asthma and Immunology Foundation research grant. It is led by Dr. Philippe Bégin, allergist at CHU Sainte-Justine.

If you have a food allergy or are a parent of a child with food allergy, you’re invited to participate in this important study. You will be asked to complete an online survey, available in English and French, that should take approximately 40 minutes to complete. This survey is lengthy because it includes detailed questions on your general health preferences, which are needed to establish quality of life indicators for the food allergy population. These measurements have never been calculated before.

Your participation in the study is vital to providing the researchers, and patient organizations like ours, with insightful results on how the quality of your life can be greatly improved. These results will help to inform our advocacy efforts with government and other key stakeholders to drive positive change, such as:

  • Increase access to drug coverage (e.g., ensuring everyone has access to epinephrine)
  • Improve clinical resources (e.g., increased access to allergists, proper diagnosis, treatments, and more)
  • Secure public investments (e.g., additional government funding for this medical condition)

Participate now

Your participation is crucial to providing the researchers with meaningful results. Please take the time to complete the survey.

Note: the survey will not work on mobile phones.

Take the survey: https://interne3ls.3it.usherbrooke.ca/allergies

Contact details

For any questions or comments on this research, please contact the research team at 514-345-4931, extension 4201 or at info.allergie.hsj@ssss.gouv.qc.ca. For any questions regarding your rights as a participant in this research project or if you have any complaints or general comments, please contact the CHU Sainte-Justine ombudsman at 514-345-4749.

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